For Vivian Goh, everyday tasks such as eating, moving around or brushing one’s teeth are beyond her grasp.
But through her eyes and speech, she connects with the world, runs a business and has also written a book about her story.
The 41-year-old has been bedridden since she was 19 due to a neuromuscular disease, but her medical woes go back to when she was seven months old, when she was unable to sit unassisted.
She was diagnosed with spinal muscular atrophy when she was around 2½ years old.
But Vivian has remained cheerful over the years, and currently runs her own e-commerce website and recently even published her book.
Titled Bed-ridden And Unstoppable, the book, out in December last year, details her life since birth.
At 18 months old, Vivian suffered a very high fever, the first of many that would see her in and out of hospital constantly.